CureTogether, a Health 2.0 Startup based in Silicon Valley, has released the first crowdsourced books on vulvodynia and endometriosis: two common, poorly understood conditions causing daily pain for millions of women. Assembled from the input of 190 and 137 women living with these respective conditions, \u201cVulvodynia Heroes\u201d and \u201cEndometriosis Heroes\u201d are the product of an ongoing online research study at http:\/\/www.curetogether.com<\/a><\/a>.<\/p>\n \u201cPatients came together and decided what symptoms and treatments they wanted to track. They went on to diligently gather detailed, quantitative data on their bodies and experiences,\u201d said Alexandra Carmichael, co-Founder of CureTogether. \u201cThe hope of this book is to spread awareness, reach out to people in pain who may not have heard of endometriosis, and increase interest and funding for future research.\u201d<\/p>\n \u201cThese heroes are pioneers not just in investigating their own condition, but in developing self-cure practices that others can follow.\u201d, said Gary Wolf, Contributing Editor of Wired and Blogger at The Quantified Self. <\/em>\u201cMany other women who are suffering will find this very helpful and inspiring,\u201d said Elizabeth Rummer, MSPT at the Pelvic Health and Rehabilitation Center in San Francisco. A patient with endometriosis added, \u201cThis is great. I am just starting to really appreciate what awesome power CureTogether can have.\u201d<\/p>\n Endometriosis is a painful chronic condition that affects 5\u201310% of women, and vulvodyna affects up to 16% of women at some point in their lives. They are two of the most active condition communities at CureTogether, with information about symptoms, treatments, and causes added by over 300 women. The books are available at http:\/\/www.curetogether.com\/VHeroes<\/a><\/a> and http:\/\/www.curetogether.com\/EHeroes<\/a><\/a>.<\/p>\n About CureTogether<\/strong><\/p>\n CureTogether launched in 2008 to help people anonymously track and compare health data \u2014 to better understand their bodies, make more informed treatment decisions and contribute data to research. Starting with 3 conditions (Migraine, Endometriosis and Vulvodynia), its members have since expanded it to support 228 conditions.<\/p>\n *Please note that the information in Vulvodynia Heroes and Endometriosis Heroes and at CureTogether.com<\/a> does not constitute medical advice.<\/p>\n For more information, please contact Alexandra Carmichael at 650\u2212533\u22122163 or <\/a> alexandra@curetogether.com<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" Over 300 Women Share Experiences, Treatments for Painful, Common Chronic Conditions CureTogether, a Health 2.0 Startup based in Silicon Valley, has released the first crowdsourced books on vulvodynia and endometriosis: two common, poorly understood conditions causing daily pain for millions of women. Assembled from the input of 190 and 137 women living with these respective [\u2026]<\/p>\n","protected":false},"author":64,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,11,41,13,16],"tags":[61,54,53,56,57,60,55,58,59],"class_list":["post-355","post","type-post","status-publish","format-standard","hentry","category-biological","category-biotech-medical","category-information-science","category-open-access","category-open-source","tag-chronic-pain","tag-crowdsourced","tag-curetogether","tag-endometriosis","tag-quantified-self","tag-research","tag-vulvodynia","tag-wired","tag-womens-health"],"_links":{"self":[{"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/posts\/355","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/users\/64"}],"replies":[{"embeddable":true,"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/comments?post=355"}],"version-history":[{"count":0,"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/posts\/355\/revisions"}],"wp:attachment":[{"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/media?parent=355"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/categories?post=355"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/lifeboat.com\/blog\/wp-json\/wp\/v2\/tags?post=355"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}